Newsroom

A young girl with Down syndrome wearing headphones and sitting at a table

The INCLUDE Data Coordinating Center (DCC) and Kids First Data Resource Center (DRC) hosted this year’s New Research Gold Rush Ancillary Event on Thursday, November 7, 2024, during the ...

Nov 12, 2024

The INCLUDE Data Coordinating Center (DCC) is excited to host a two-week immersive summer course in data science, Data Science for Diverse Scholars in Down Syndrome Research (DS3), from ...

Oct 31, 2024

Based on recommendations from the National Institute of Child Health and Human Development (NICHD) Office of Data Science and Sharing, the INCLUDE Data Coordinating Center (DCC) and the associated National ...

Oct 31, 2024

The National Institutes of Health (NIH) recently launched a new long-term study led by NIH’s INCLUDE Project to observe and track health data of people with Down syndrome ...

Oct 30, 2024

Join the INCLUDE Data Coordinating Center (DCC) for a virtual INCLUDE Data Hub Webinar on Wednesday, October 16, 2024, from 3:00 pm - 5:00 pm ET. 

Oct 23, 2024

Join the INCLUDE Data Coordinating Center (DCC) at the ASHG Annual Meeting in Denver, Colorado from November 5-9, 2024. You can stop by our booth and register for our ...

Oct 10, 2024

The INCLUDE Data Coordinating Center (DCC) attended the 2024 Down Syndrome Diagnosis Network (DSDN) Rockin' Mom Retreat in Las Vegas, Nevada from September 27-28, 2024.

Oct 04, 2024

The INCLUDE DCC attended the National Down Syndrome Congress (NDSC) Convention and Down Syndrome Medical Interest Group (DSMIG) Symposium from July 25-28, 2024 in Phoenix, AZ.

Aug 16, 2024

The INCLUDE Data Hub has released new data to the INCLUDE community!

Aug 14, 2024

The INCLUDE Data Coordinating Center host its office hours on the second Wednesday of each month from 12:00 to 1:00 pm ET.

Aug 06, 2024

The INCLUDE Data Coordinating Center (DCC)hosted the third annual in-person, immersive summer course in data sciences known as the Data Science for Diverse Scholars in Down Syndrome Research ...

Jul 26, 2024

Trisomy 21 Research Society (T21RS) International Conference celebrated its 10th anniversary and 5th international conference this year in Rome, Italy from June 5-8, 2024. Hundreds of researchers, clinicians, organizations ...

Jun 17, 2024

The NIH INCLUDE (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project Team invites you to join us for a dynamic DEIA webinar on Community Engagement ...

May 16, 2024

The NIH INCLUDE Project hosted over 250 Down syndrome (DS) researchers, self-advocates, community members and DS advocacy partners at the INCLUDE Investigators Meeting hosted on the NIH campus, April ...

May 06, 2024

The NIH INCLUDE Project Data Coordinating Center (DCC) team hosted the virtual 2024 Spring INCLUDE Data Hub Webinar on Tuesday, April 23, 2024 from 12 p.m. - 2 p.m ...

May 03, 2024

The INCLUDE DCC will have booth presence and speaking opportunities at major Down syndrome-focused conferences in the next few months.

May 02, 2024

Join the NIH INCLUDE Project Data Coordinating Center (DCC) team for a virtual INCLUDE Data Hub Webinar on Tuesday, April 23, 2024, from 12 - 2 p.m. ET. During the ...

Apr 08, 2024

Application submissions have been extended to Monday, April 1 at 11:59 P.M.

Mar 21, 2024

The INCLUDE Data Coordinating Center (DCC) is hosting an in-person, immersive summer course in data sciences known as the 2024 Data Science for Diverse Scholars in Down Syndrome Research ...

Mar 21, 2024

The INCLUDE Data Coordinating Center attended the 2024 Down Syndrome Affiliates in Action Annual Leadership Conference in Dallas, Texas, on February 15-17th. Leaders from local, state and regional Down ...

Mar 01, 2024

Register now for the 2024 NIH INCLUDE Investigators Meeting on April 15 – 16, 2024 at Natcher Auditorium in Bethesda, MD. Registration closes April 1, 2024, 11:59 PM ET!

Feb 12, 2024

The NIH INCLUDE (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) Project and the INCLUDE Data Coordinating Center (DCC) invite trainees and early career investigators (e ...

Jan 29, 2024

INCLUDE Data Hub study, the Crnic Institute Human Trisome Project, releases new Virtual Biorepository feature to support more efficient sample requests and encourage collaboration between researchers.

Jan 09, 2024

The NIH INCLUDE Project Data Coordinating Center (DCC) team hosted a virtual INCLUDE Data Hub Webinar on Thursday, December 7th 2023, from 12 p.m. to 2 p.m. ET.

Dec 13, 2023